Where Are My Friends?

I have recently decided I am going to pretend i no longer have POTS. I posted that i was in the hospital on my Instagram page and guess how many people asked if I was okay or anything, go on guess. Thats right, zero. Not one person cared enough to even leave a message asking if I was okay or just a nice comment. So from that, I no longer have POTS to anyone other than my family. I still have them, they still care.... well... some do anyways.

Its not even that I want attention from this, I honestly just want somebody to actually care about me and maybe just wonder how I am doing. Does it seem silly?


On a good note- Only 7 more days till Christmas Eve when I leave for my Grandparents house. Excited for that. Finally excited for something, haven't felt this in quite a while.

If I don't post before Christmas then i hope you ALL have a good Christmas and hope you can spend it with your family and those who love you. :)
Merry Christmas my fellow spoonies

Saline IV Therapy

On Friday i got my very first dose of saline solution. I only got 1 bag to start with and it took about an hour and a half. It took a little longer because while i was getting the saline my hand started hurting really badly so they had to slow it down and they wrapped my hand up in a hot blanket which seemed to help. I think it was just going in too fast for my small veins.

I noticed right away after i finished that i wasn't as dizzy as i was when i went in. I didn't feel that different for about an hour, more tired from sitting for an hour. So i really thought it wasn't helping at all and i was a little upset.

Around 1 or 2 hours later i just got this major burst of energy. It was amazing i haven't had any energy the past year let alone HUGE amounts of energy. I really didn't even know what to do with myself i just kind of ran around the room i felt so good. It was the best feeling in the world having so much energy. The next day i didn't have nearly as much energy as before but i still felt pretty decent. I was able to go out for about 2 hours but then i needed to lay down for awhile to recover. The day after that i was back to feeling crappy, not as crappy as i had before the saline but still not very good.

The saline wore off super quick and i didn't get that long of a time with energy. I was kind of disappointed at how fast i felt bad again but i am still really happy at how great it worked even for just a few days.

I am definitely going to be trying this again and probably more regularly, i think the maximum was every 10 days. I am hoping this will keep me going and help boost me to get the energy i need to workout and exercise so i can start feeling better in the long run.

Here are some links talking about saline and how to talk to your doctor about getting it. I can see that its helped me some and i have read many other blogs about people getting saline who love it. I haven't seen one bad review or experience with getting saline before.

http://potsgrrl.blogspot.ca/p/in-support-of-iv-saline-therapy-for.html

http://potsgrrl.blogspot.ca/2011/08/how-to-talk-to-your-doctor-about-iv.html

Bad Episode

So this past weekend i had a major episode, i was at a music festival with my friends when i just got super nauseous randomly so i put my head down on my bag (everyone was sitting on the ground so i just laid down there). I must have passed out for a bit and when i woke up everything was spinning super fast and i was confused and disoriented, i didn't know where i was or who i was. I laid down again and passed out a few more times. When i finally sat up i was shaking and my whole body was vibrating from my heart beating so fast. I couldn't see anything and i was just super scared and confused i had absolutely no idea what was going on around me or anything at all. I do remember hearing people around me speaking to me asking me things but i couldn't understand them and i couldn't speak or move, i felt paralysed.  My friend who thank god stayed with me after i got nauseous got really scared, i must have looked really bad. My friend called me mom and she ran as fast as she could(Never seen her run like that before) because she said she could tell something was seriously wrong in my voice. We got a taxi and she told me i passed out in the taxi again. When we got home i went straight to my bed and my mom got me water and some salt. I don't remember much of what happened after that i just know my mom stayed with me all night. In the morning i felt better, not completely but i wasn't super disoriented anymore and i knew what my surroundings were. I have had something similar happen before but nothing to this degree. It was probably the scariest time of my life this far and i thought i was dying.

I did call the doctor the next day and she doesn't really know what happened but they told me to come in and they could check me out and give me fluids.

If this has happened to anyone ever before let me know, or if you have any idea what happened that would be great to hear some suggestions.