So I'm going back to school in February! Cancel that exclamation point because I am not excited.
I will be going in the afternoon for once class only, last period math. I am scared to death, I don't know how i am going to cope with going to school everyday when right now I just lay in bed all day feeling horrible. My mom said it may not work so at least she knows I might not be able to handle it. I really hope I can though, I miss seeing people other than my family, I miss having friends, I miss the world.
The most of the world I see these days are my back ally when I let my dog out and from what I can see from my window, thats pretty much it. It gets depressing so I am excited to get out of this house finally, excited but extreme anxiety.
Its a grade 10 class, even though I should be in grade 11. I probably won't have that many friends going back as I will only be there for an hour and a half everyday and I won't be in the same grade class as my friends I have there.
Btw, did I ever mention that this is the school that kicked me out for being sick and missing too much and then denying me back in after i filed an appeal and then finally accepting me back after getting all my doctors to demand i go back? Yeah. I am not dealing with the same people who i dealt with last time since they really screwed me over. I have a new principal I already met with and she seems really nice and helpful so far, so thats good. I am meeting with her and my new teacher soon so I really hope he is nice or else it will make this 100x harder.
Agh, I am scared.. I hate my anxiety I worry about nothing. Hope you're all doing well, haven't posted since before Christmas so i hope you guys had a good Christmas.. I really did!
Sending love to all my spoonies out there :)
Showing posts with label fainting. Show all posts
Showing posts with label fainting. Show all posts
Thursday, January 23, 2014
Tuesday, September 10, 2013
30 Things About My Invisible Illness You May Not Know
Since it's invisible illness awareness week and this is going around i thought i would answer the questions and i hope all of you reading it with invisible illness's also do this post and those without share it and spread awareness.
1. The illness I live with is:
POTS (Postural Orthostatic Tachycardia Syndrome).
2. I was diagnosed with it in the year:
2013
3. But I had symptoms since:
I think 2011 is when i first noticed my tachycardia but abdominal pain before that for years
4. The biggest adjustment I’ve had to make is:
Learning to limit myself and ask others for help when i need it.
5. Most people assume:
I am fine most of the time because when i put on make up i look healthy and fine and they don't understand how bad i actually feel. They also assume POTS is not serious because its not life threatening.
6. The hardest part about mornings are:
Getting out of bed without passing out. Mornings are always the worst and when i am most fatigued and have the worst tachycardia.
7. My favorite medical TV show is:
Untold Stories of the ER
8. A gadget I couldn’t live without is:
Does my computer count? I watch my favourite shows to help keep me distracted.
9. The hardest part about nights are:
The muscle pain, not being able to get comfortable. And the insomnia
10. Each day I take __ pills & vitamins.
11
11. Regarding alternative treatments I:
I have never tried it
12. If I had to choose between an invisible illness or visible I would choose:
Somedays i wish i had a visible illness when ignorant people don't realize how much pain i actually am in. But other days its nice to be able to hide if if i don't want anyone to know how i feel. 50/50 for me.
13. Regarding working and career:
I am a student right now, but thats super hard for me and i miss a lot. Last year my school asked me to leave because i was sick too much so starting a new school this year which i haven't been able to go one day yet.
14. People would be surprised to know:
I try very hard to be positive but its hard to do
15. The hardest thing to accept about my new reality has been:
Losing many friends and not being able to go out with people and live a normal teenage life.
16. Something I never thought I could do with my illness that I did was:
When i go out for long periods of time and am able to do so without fainting i am surprised, but pleasantly surprised.
17. The commercials about my illness:
Don't exist.
18. Something I really miss doing since I was diagnosed is:
Going out to hang out with friends and i miss having a social life.
19. It was really hard to have to give up:
many friends
20. A new hobby I have taken up since my diagnosis is:
Taking pictures
21. If I could have one day of feeling normal again I would:
Go to school and go out to the parties i am always missing
22. My illness has taught me:
Not to judge people by appearance. I never understood it very well being a typical teenager, but now i experience getting judged everyday.
23. Want to know a secret? One thing people say that gets under my skin is:
When people complain about being tired, there is a difference between being tired after a long day or being severely fatigued after just sitting up. When they say they know how you are feeling. Also i hate the most when people complain about things like having a cold and being in bed for 2 days.
24. But I love it when people:
I get a simple phone call or text asking how i'm doing, but only when i know they genuinely care and are not just simply curious and don't really care how i'm actually feeling. Or when people offer to do something simple without asking like offering to stay home and watch a movie with me.
25. My favorite motto, scripture, quote that gets me through tough times is:
Do not have one at the moment right now :/
26. When someone is diagnosed I’d like to tell them:
I understand what you are going through and i want them to talk to me because i DO care and will completely understand. To look for a doctor who also genuinely cares about your well being and is educated of your illness. Don't just stay with a doctor because you found him if you are not satisfied and are completely happy with him. Also to surround yourself with loving and caring people because you will need them when times get tough.
27. Something that has surprised me about living with an illness is:
How different your life can change, I didn't take POTS seriously at the beginning and i didn't think it was something i would notice it everyday. But things got worse and your life completely changes.
28. The nicest thing someone did for me when I wasn’t feeling well was:
My family bought me pink roses recently and watched my favourite show with me. I've been having an extremely rough time and it made me happy to know they care about me and want me to be happy.
29. I’m involved with Invisible Illness Week because:
I live with it everyday and it SUCKS, i want to find a cure and spread awareness to people who have been misdiagnosed and are needing treatment. People need to know about the illness's people can live with everyday. Hopefully if we spread awareness people will take us seriously and help find a cure.
30. The fact that you read this list makes me feel:
Happy :)
Thank you for reading this, if you read the whole thing. Together we can fight and find a cure and show people that we are fighting a real battle and what we have to live with everyday is serious to us and it affects us majorly.
Share this and other peoples, make your own or just talk about it.
1. The illness I live with is:
POTS (Postural Orthostatic Tachycardia Syndrome).
2. I was diagnosed with it in the year:
2013
3. But I had symptoms since:
I think 2011 is when i first noticed my tachycardia but abdominal pain before that for years
4. The biggest adjustment I’ve had to make is:
Learning to limit myself and ask others for help when i need it.
5. Most people assume:
I am fine most of the time because when i put on make up i look healthy and fine and they don't understand how bad i actually feel. They also assume POTS is not serious because its not life threatening.
6. The hardest part about mornings are:
Getting out of bed without passing out. Mornings are always the worst and when i am most fatigued and have the worst tachycardia.
7. My favorite medical TV show is:
Untold Stories of the ER
8. A gadget I couldn’t live without is:
Does my computer count? I watch my favourite shows to help keep me distracted.
9. The hardest part about nights are:
The muscle pain, not being able to get comfortable. And the insomnia
10. Each day I take __ pills & vitamins.
11
11. Regarding alternative treatments I:
I have never tried it
12. If I had to choose between an invisible illness or visible I would choose:
Somedays i wish i had a visible illness when ignorant people don't realize how much pain i actually am in. But other days its nice to be able to hide if if i don't want anyone to know how i feel. 50/50 for me.
13. Regarding working and career:
I am a student right now, but thats super hard for me and i miss a lot. Last year my school asked me to leave because i was sick too much so starting a new school this year which i haven't been able to go one day yet.
14. People would be surprised to know:
I try very hard to be positive but its hard to do
15. The hardest thing to accept about my new reality has been:
Losing many friends and not being able to go out with people and live a normal teenage life.
16. Something I never thought I could do with my illness that I did was:
When i go out for long periods of time and am able to do so without fainting i am surprised, but pleasantly surprised.
17. The commercials about my illness:
Don't exist.
18. Something I really miss doing since I was diagnosed is:
Going out to hang out with friends and i miss having a social life.
19. It was really hard to have to give up:
many friends
20. A new hobby I have taken up since my diagnosis is:
Taking pictures
21. If I could have one day of feeling normal again I would:
Go to school and go out to the parties i am always missing
22. My illness has taught me:
Not to judge people by appearance. I never understood it very well being a typical teenager, but now i experience getting judged everyday.
23. Want to know a secret? One thing people say that gets under my skin is:
When people complain about being tired, there is a difference between being tired after a long day or being severely fatigued after just sitting up. When they say they know how you are feeling. Also i hate the most when people complain about things like having a cold and being in bed for 2 days.
24. But I love it when people:
I get a simple phone call or text asking how i'm doing, but only when i know they genuinely care and are not just simply curious and don't really care how i'm actually feeling. Or when people offer to do something simple without asking like offering to stay home and watch a movie with me.
25. My favorite motto, scripture, quote that gets me through tough times is:
Do not have one at the moment right now :/
26. When someone is diagnosed I’d like to tell them:
I understand what you are going through and i want them to talk to me because i DO care and will completely understand. To look for a doctor who also genuinely cares about your well being and is educated of your illness. Don't just stay with a doctor because you found him if you are not satisfied and are completely happy with him. Also to surround yourself with loving and caring people because you will need them when times get tough.
27. Something that has surprised me about living with an illness is:
How different your life can change, I didn't take POTS seriously at the beginning and i didn't think it was something i would notice it everyday. But things got worse and your life completely changes.
28. The nicest thing someone did for me when I wasn’t feeling well was:
My family bought me pink roses recently and watched my favourite show with me. I've been having an extremely rough time and it made me happy to know they care about me and want me to be happy.
29. I’m involved with Invisible Illness Week because:
I live with it everyday and it SUCKS, i want to find a cure and spread awareness to people who have been misdiagnosed and are needing treatment. People need to know about the illness's people can live with everyday. Hopefully if we spread awareness people will take us seriously and help find a cure.
30. The fact that you read this list makes me feel:
Happy :)
Thank you for reading this, if you read the whole thing. Together we can fight and find a cure and show people that we are fighting a real battle and what we have to live with everyday is serious to us and it affects us majorly.
Share this and other peoples, make your own or just talk about it.
Wednesday, August 21, 2013
Bad Episode
So this past weekend i had a major episode, i was at a music festival with my friends when i just got super nauseous randomly so i put my head down on my bag (everyone was sitting on the ground so i just laid down there). I must have passed out for a bit and when i woke up everything was spinning super fast and i was confused and disoriented, i didn't know where i was or who i was. I laid down again and passed out a few more times. When i finally sat up i was shaking and my whole body was vibrating from my heart beating so fast. I couldn't see anything and i was just super scared and confused i had absolutely no idea what was going on around me or anything at all. I do remember hearing people around me speaking to me asking me things but i couldn't understand them and i couldn't speak or move, i felt paralysed. My friend who thank god stayed with me after i got nauseous got really scared, i must have looked really bad. My friend called me mom and she ran as fast as she could(Never seen her run like that before) because she said she could tell something was seriously wrong in my voice. We got a taxi and she told me i passed out in the taxi again. When we got home i went straight to my bed and my mom got me water and some salt. I don't remember much of what happened after that i just know my mom stayed with me all night. In the morning i felt better, not completely but i wasn't super disoriented anymore and i knew what my surroundings were. I have had something similar happen before but nothing to this degree. It was probably the scariest time of my life this far and i thought i was dying.
I did call the doctor the next day and she doesn't really know what happened but they told me to come in and they could check me out and give me fluids.
If this has happened to anyone ever before let me know, or if you have any idea what happened that would be great to hear some suggestions.
I did call the doctor the next day and she doesn't really know what happened but they told me to come in and they could check me out and give me fluids.
If this has happened to anyone ever before let me know, or if you have any idea what happened that would be great to hear some suggestions.
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